The BookEnd Caregiving Project was started to enhance collaboration between researchers, health practitioners, community organizations, and caregiving families in the Triangle J region of North Caroline.

This project is partially funded through a Patient-Centered Outcomes Research Institute (PCORI) Pipeline to Proposal Award (project 5135083), administered on behalf of PCORI by the Georgia Health Policy Center at Georgia State University. Our primary aim during this first stage of work is to listen to and learn from youth caregivers and older adults and their families, with the intent of ensuring that our future research reflects their needs, concerns, and priorities. During the term of this first phase, which runs August 1 to May 31, the project team will be:

  • Reaching out to caregiving families and other relevant stakeholders through media such as this website, and in person by attending relevant conferences and workshops in the region.
  • Holding listening events in community centers, schools, and other community services to reach out to youth caregivers of aging adults, or aging adults who may be cared for by a young family member.
  • Creating avenues through which caregiving families can provide input and information virtually.
  • Building our governance structure to ensure that youth caregivers and their families have a say in the kinds of research conducted on their behalf.

If you are interested in this project, or you think that you can help our team learn more about BookEnd Caregivers, please contact Elizabeth Olson, project PI, through email (eaolson@email.unc.edu). More information will be available on this website as the project progresses.

Please follow the link below to learn more about our efforts.

 http://thehill.com/opinion/healthcare/370578-the-us-needs-to-support-and-recognize-youth-caregivers