What is special about bookend caregiving?

We are a network dedicated to improving the well-being of youth caregivers and the older adults with complex or chronic health conditions for whom they provide care. The phrase “bookend caregivers” describes this important relationship of caregiving which, like most youth caregiving in the United States, is a largely hidden phenomena. We are working with schools, medical practitioners, and caregiver organizations to understand the priorities and unrecognized needs of bookend caregiving families, and would love to hear from you.